My Mollii Suit Blog


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Week 10 (19th to 26th July)

 

Wednesday 19th July

It's quite amazing how different I had been feeling over the last few days when I hadn't been using the hire suit whilst waiting for my own suit to arrive. Everything was just so much more difficult as the degrees of spasticity became more and more extreme. As my suit arrived yesterday we had cooked in the evening. It felt so good to have some of the spasticity gone and the abilty to get round easier.

During my evening cook I noticed a much higher amount of "tingling" in my right hip and left arm. This was expected as those were the areas that I had asked Remotion to tweek following my trial, in order to hopefully improve the movement in my left hand and also to reduce the pain in mu right hip.

Thursday 20th July

Something that I have mentioned so far is the improvement I have realised in my sleeping position. For most of my life I believe I have slept with one leg on top of the other, however, for several years I haven't been able to do this. Since Mollii treatments I have gradually regained the ability to sleep in this position.

Prior to this I had to have the upper leg tucked behind the other one (I couldn't put it in front as that made changing positions ultra difficult), which wasn't very comfortable.

In addition to this I am fairly confident that I had an extensive period of time, several hours, where I wasn't aware of any pain in my right hip. This is a major milestone for me as pre Mollii I said I would be happy if I just had a period of time without hip pain.

Friday 21st July

I'm fairly certain that the pain in my right hip is significantly reduced.

Saturday 22nd July

Woke up in the middle of the night and when I was sitting on the edge of the bed I noticed how flat against the bed my left hand felt. Not sure why, but I thought I would try to see how touching my fingers to my thumb would go. In the most recent attempts I have managed to do my index and middle finger only. I was toyally shocked to be able to do all 4 fingers in both directions. This is clearly one to build on as for the rest of the day I could only get to my Ring finger.

In the clip that follows, pre Mollii (30th April 2023) is on the left and after Mollii (22nd July2023) is on the right.

When cooking in the evening I noticed some of the suit tingling in my left leg. This is the first time I have noticed this. In addition there was more tingling in my right hip.

This was another day where the pain in the right hip was significantly reduced/gone.

Monday 24th July

Sleeping through the night appears to have returned which is great. There have been many positives seen throughout the day. When sitting in the office chair my left foot is staying on the floor almost all the time which is making things much easier. When walking I have noticed that my left leg is slightly less "peg leg" like and the stride length is larger.

Tuesday 25th July

Starting to hate hot summer days. Everything was impacted today. On a positive side, the exercise bike has been relocated and day 1 of the "arm" exercises has started properly.